Friday, December 6, 2013

Colon Cancer. You are a real pain in my ass

Actually.  Not my ass but ironically my lower back and it may just not have anything whatsoever to do with cancer.  I f$#%ing hope not.  What the hell are you talking about, Dave?  Pain?  Lower back?  Wtf?!

Let me catch you up.

Back in the summer I began to notice a pain...more like a dull soreness in the middle of my lower left back.  At first I thought it was just related to packing and lifting boxes and furniture in the move out of our condo into a house in June / July.  I thought to myself...it's just a pulled muscle.  A strain.  A soft tissue injury.  Or maybe my body is just complaining that I had done some physical activity that it wasn't used to for a loooooonnnnnngggggg time. At least before the diagnosis and surgery.

But the pain didn't go away.

I started thinking to myself "am I imagining this?".  Should I tell Victoria?  Should I tell my doctors?  Surely they will just fluff it off as nothing major..stop worrying about little stuff like a little discomfort in my side.  Will my oncologist think I am just being paranoid, am seeking attention?  That I need to be sick and for doctors to be examining me, paying attention to every little sore I report in order to feel that I am being watched out for?  That I am not being lost?  That's ridiculous.

So I decided to report the discomfort to my oncologist during my follow-up routine exam in August.  And she took me seriously.  Essentially she said it was critical for me to listen to my body and that if I didn't feel something was quite right and that something like pain didn't go away for what should be a reasonable period of time then I should report it.  Noone knows my body better than I.  I need to stay vigilant.  She immediately sent me for a chest x-ray to rule out involvement with the lungs of my cancer.  (Remember they have been keeping an eye on lesions / abnormal cellular structures in multiple nodes in my lungs - they have been stable since last March at first diagnosis but definitely need to keep alert of these for any change.)


I had to explain to Victoria why my "routine" visit to the hospital was taking so much longer because I was being sent for tests like a chest x-ray.  This began a chain of worry.  "Why didn't you tell me that you were feeling pain, Dave?"  "Why are you being sent for a chest x-ray?"  "What the hell is going on here?".

Within a matter of minutes I went from a routine physical exam in my Oncologist's office to having a chest x-ray in the all-too-familiar Diagnostics Dept. at St. Joseph's Health Centre.   Just a few hours later I got a phone call from the Oncology clinic at St. Josephs.  Chest x-ray is clear.  Nothing to worry about... at least not for most...but the fact that the chest x-ray came back clear didn't negate the fact that I was still experiencing discomfort when I shouldn't be.  Or was it all in my mind?  Was I imagining this shit?

When I met with my family doctor a few weeks later I reported it to her as well.  She listened too. And that afternoon  I was sent for another chest x-ray but this time with special instructions to take pictures from the side as well.  And she sent me for a nuclear bone scan - a first for me.  What a test that was from going to the hospital and being injected with a radioactive substance...leaving for home to "chill" for a couple of hours...only to return and lay in a machine for what seemed like hours listening to the steady hum of the machines in the room.  I actually fell asleep in the bone scan machine.

Later that day I got a phone call from my family doctor.  (Who has a doctor that calls them at home?!)  The chest x-ray and the bone scan were both clear.  Breathe, David.  No spread of cancer to the bones.  No lung metastases.  Relax for a bit if you can.

And later that evening when I blew a kiss to my son (you see...with the bone scan I was radioactive to his little body so I couldn't snuggle him, to hold him in my arms and kiss him as I wanted to do.  Just to be safe.) I thought to myself that I did the right thing by telling my doctors.  I didn't mean to send Victoria into a spiral of worry and anxiety again but I needed to listen to my body.  I couldn't help thinking that if I had listened more closely to my body a couple of years ago when I first started having bowel issues that maybe things would be different.  Maybe the tumour in my sigmoid colon wouldn't have advanced so far. Maybe it wouldn't have spread its cancerous hell into the regional lymph nodes - forever sending fears that it has spread to other organs remote from the colon.  But the stark reality is that we will never know.

I would much rather err on the side of caution now and be overly sensitive to every pain, to every discomfort, to everything in my body that just doesn't quite seem right than to just fluff it off as nothing to worry about...until it is too late to do anything about it.

A shout out to my doctors for listening to me.  For not sitting on this.  For ruling out the worst.  For being in my corner as I continue to fight and battle and kick the crap out of colon cancer.

Thank you, Doctor.  You are a very important member of the Kicking the Crap Crew.


Thursday, December 5, 2013

The Kicking the Crap Crew Kicked it...Old School

It has been a long time from my last post and there has been a lot of water under the bridge...some wonderful highs, some terrifying moments and lowest of lows...so much to communicate...where to begin...let's start with the Bum Run.

When last I posted I was just a few weeks away from the 2nd Annual Bum Run for colon cancer.  The Kicking the Crap Crew once again came together on a beautifully sunny, warm Sunday in August in downtown Toronto with a few new members and regrets for some from the previous year who could not join us all with the single-minded focus to raise money, awareness, to show support for those who, like me, are battling with colon cancer or have lost the fight.  Friends and family joined hundreds of others enthusiastic runners on that Sunday in August and man did we represent.  It absolutely thrills me to report that the Kicking the Crap Crew raised over $8000 for colorectal cancer research - and smashed our fundraising goal in the process - which represented approx. 14% of the total online funds raised.   The Kicking the Crap Crew - or The Crew, KTCC - represented, yo!!!.   The Crew was the #1 fundraising team in the whole event and drew the attention of the founder, Dr. Bookman, the Event organizers and Colon Cancer Canada as they tweeted out our results regularly to spur others on.  Way to go, Crew.  As Team Captain I am so humbly proud of you all.  As a colon cancer patient and battler I am moved, touched and so entirely grateful for all of your support.






On a personal note I myself am thrilled to report that I was honoured to have 66 people sponsor me for this year's Bum Run and raised over $4800 for colon cancer research and education / awareness. This total represented the second highest individual fundraising total behind Darlene...and I could not be happier to be in this position.  You see, I had the honour of meeting Darlene after the run while waiting to record a patient video by request of the event organizers.  Darlene was running for her late sister who had lost the battle to this f$$%^ng awful brutal disease.  When I introduced myself to her she immediately recognized who I was...whether through reading my personal web page on the Bum Run site or by way of my blog...it really doesn't matter.  I hugged her and thanked her personally for raising so much for the battle and expressed my sorrows for the loss of her sister.  We shared tears.  A shout out to you, Darlene.

This year was so different from last year.  Last year I was in mid-chemo treatments and my energy level along with physical health was not great.  It was all I could muster to simply walk beside my very pregnant wife Victoria as we both pulled up the rear of the event - with Toronto police officers escorting us around the run route and event organizers picking up the orange pylons behind us.  This year I am blessed to have been healthy enough to not only walk the event but even ran (ok - jogged is more like it) for some stretches of the 5 kilometre route.  In fact, I crossed the finish line jogging while pushing the stroller which held my sleeping son, Benjamin.  It is impossible to articulate just how I felt emotionally as I crossed the line while pushing my son.  It wasn't about the accomplishment of the physical feat of running but rather the fact that I was healthy enough this year to jog across the finish line.

There will be a third annual Bum Run in 2014.  I am healthy and determined to represent the Kicking the Crap Crew once again and do even more to raise funds and get out the word about colon cancer.  After all, we all share the same goal - to kick the crap out of colon cancer once and for all.

Tuesday, August 6, 2013

Still Kickin' it

Hello again to all who stop and read...thought I would give an update on the upcoming Bum Run with funds raised going towards colon cancer education, screening efforts and patient advocacy.  It is just under 3 weeks to go before the 2nd Annual Bum Run Sunday August 25th, and the Crew is at 75% of our fundraising goal and I am at an amazing 86% of my personal goal for this so very personal event.   



For that I wish to give everyone who has sponsored me (or a member of the Crew) a huge shout out of thanks.  I continue to be humbled, overwhelmed and inspired by all the messages of support and by the sponsors for the Bum Run. 

THANK YOU!!!

I don't want to turn this blog into a plug or appeal for sponsors but with everything I have endured this past year in this battle with cancer, watching friends and loved ones lose their battle with this brutal illness, I have come to the perspective that I will do everything I can to support the cause in the fight against (colon) cancer whether it be taking care of my own health or supporting the Canadian Cancer Society as a patient ambassador.  

So for those that wish to sponsor me or a member of the Crew and help me beat our fundraising goals, please click the link http://my.myccc.ca/Kickingthecrapcrew?SID=3805246&LangPref=en-CA



I appreciate that charity is a very personal choice.  If you choose to sponsor me or a member of the KTCC in the 2013 Bum Run for colon cancer Thank You! Perhaps more importantly thank you for being an honourary member of the Kicking the Crap Crew!!


This past weekend at the family cottage I even ran - twice - for the first time since before the surgery and chemotherapy.  The runs were only about 2km ea. and I guess I shouldn't be shocked at how completely out of shape I am now...after all...the surgery, chemo, Neupogen injections, all took a heavy heavy toll on my body.  But it felt sooooooooo good to put the ol' running shoes on, turn up the volume on my iPod and lose myself in the same mix I had setup for the half marathon I ran three years ago.  I haven't been formally training for this event but have been kept busy by a very active eight-month old boy - my son Benjamin.  He keeps me inspired to battle this brutal illness and along with my rock of a wife, Victoria, also keeps me focused on what is really important in life.  And quite honestly I am inspired (and want to give a shout out) to my sister, Jodie who is training for a half marathon - after giving birth to three (beautiful) girls and the toll it took on her body.  Hell when I watch her get up at the cottage where she is supposed to be enjoying her holidays and relaxing in the serenity of life up north and before having breakfast go out and run for 16km I figure I can do a measly two ;-)  Way to go, Jod.  You continue to make me shake my head in awe.

When I reflect personally on last year at this time while in chemotherapy treatment I remember barely having the physical stamina to walk the 5k much less run it - this year I am feeling so much stronger...I may even beat my last-place finish from last year ;-)    


Wishing you all good health.

Saturday, July 6, 2013

Kicking it old school...

This post is a shout out...to you...my supporters...my inner circle...and honourary members of the Kicking the Crap Crew.  Once again this year I have entered a team, The Kicking the Crap Crew, in the 2nd Annual Bum Run to raise funds for Colon Cancer Canada....a cause that is obviously very close to my heart and my butt.   So once again I lovingly appeal to you to get off your butts and support me or a member of the Crew in the Bum Run...


If you are reading my blog and this post you know about my journey. After diagnosis with Stage III colon cancer last March 2012, I underwent urgent resection surgery and then began a 12-cycle course of chemotherapy over the next seven months. For the past year, I have been a colon cancer patient, battler, blogger, and vocal patient advocate. I began blogging (davidbenjaminbrown.blogspot.ca) shortly after diagnosis and have shared my experience of life with colon cancer. Frankly as I look back over the past year it is overwhelming.

And that is why I am running (ok maybe walking briskly) in the Bum Run to help raise awareness of colorectal cancer and to stress the importance of screening and prevention. It doesn’t get much more personal than this. I also am walking for Barb - a friend, former colleague and fellow battler who recently succumbed in the fight against a rare GI cancer.  Barb inspired me in life with her strength and courage and continues to inspire me now.  I also walk for all those battlers present and who have passed but are present in spirit. The world and I have lost fellow battlers along the way...but I know their spirit lives on and inspires me to keep fighting the fight.

When I reflect on my journey a year ago I think about being in treatment last year at this time, about barely having the energy (much less the hair) to walk much less run in the event.  But what an emotional day - I blogged about it so I won't repeat myself...but a year later things are very different - so much has happened in my life - so much to fight for, to stay strong and battle, to be as positive as I can possibly be. 

I would graciously welcome any support of me or a member of the Crew by making a secure online donation clicking the link http://my.myccc.ca/Kickingthecrapcrew?SID=3805246&LangPref=en-CA

This year I am determined to lead the Kicking the Crap Crew to be highest fundraising team total in the event.  I appreciate that charity and donations are a very personal choice.  If you choose to sponsor me in the 2013 Bum Run for colon cancer Thank You.  Perhaps more importantly thank you for being an honorary member of the Kicking the Crap Crew!!
David

Wednesday, June 26, 2013

To Barb...Hello Darlin'

On June 13, 2013 Barb James (aka Barbie to many, BJ to me) lost her battle with small bowel cancer and on June 21 back in her hometown of Saskatoon she was memorialized by family and friends.
http://www.legacy.com/obituaries/thestarphoenix/obituary.aspx?n=barbara-james&pid=165411904&fhid=6664


When I first heard of Barb's passing (on Facebook of all places) I was overwhelmed with grief...sadness...and fear...and despair.  I remember thinking to myself as I logged on to Facebook that Saturday that I hadn't seen Barb post for awhile...remembered her last post in early May where she shouted out to her industry colleagues at Bayer for help to get access to a possible treatment to hopefully extend her life...but nothing since then.  I had read in Barb's recent posts the extreme despair - you could hear it in her "voice".  But Barb always tempered her posts with  absolute strength and courage in the face of it all...and maintained her sense of humour in spite of it. How the hell she did that I will never know...but damn if she didn't show everyone how to face such brutal adversity with strength and courage. In my mind her blog has always been so fittingly titled Bring It On&nbsp http://www.barb-james.blogspot.ca/ .  I continue to this day be in awe.

Those of you reading this post and who have followed my own journey may have seen my references to Barb throughout.  In fact, I give a huge shout out to BJ in my bio...she inspired me to share my own very personal journey in such a public way and to BE exactly how I want to BE...whether that is scared as shit, sad, furious, sick, overjoyed, happy, **INSERT STATE OF BEING HERE**...it doesn't matter.  Seeing Barb's journey taught me as a battler of cancer that it is perfectly OK to BE in ANY state of being.  That in expressing raw, authentic, genuine, deep-felt emotions about having to be on this f$%^ing journey that it's ok to feel weak, to feel despair, to feel the most intense sense of anger and woe that you just want to shout "WHY ME?!!!! WHY THE F#$% ME?!!!  THIS ISN'T FAIR  THIS IS NOT F@#$ING FAIR!!!!!!".  And that's OK too. But Barb's passing also strikes at the very heart of my deepest darkest fears for my own personal journey...and I just cannot go there.  I cannot.  Barb showed me that sharing the journey with all it's highs and terrifying lows (many times the lows overwhelm any highs) inspires others...makes us stronger and better for it....serves as our own personal therapy.

Barb inspired me in her life and continues to inspire me as one of God's angels.

It is easy to see that Barb had such a positive impact on sooooo many people's lives.

Rest in eternal peace, Barb.  No more battling for you, no more sickness, no more pain.

Those of us you leave behind here will fight the fight in your memory, BJ.  You may be small in stature but your spirit leaves a heavy footprint.



Monday, May 27, 2013

An Aspirin a day keeps the colon cancer away



Folks it's been a few weeks since my last post and I thought I would just check in, submit a posting to let all of you know that I am still fighting the good fight, and give an update on my status.

I continue to adhere to a pretty clean diet - not perfect...but really trying to keep as balanced and healthy as I can while not completely sacrificing enjoyment out of life...and food.  Since my one-year post diagnosis surveillance tests last month and my meetings with my medical team - my GI, my Surgeon, my Oncologist - I have tried to lighten up just a little bit and enjoy the occasional indulgence...potato chips at the cottage, red wine wherever.  I still remember the words of my Surgeon at our last meeting.."have a steak and a beer".  After all, "if having the occasional steak and beer was to cause a recurrence of my cancer then we all have bigger fish to fry".  Essentially I was being told to live a little, that while a healthy diet and lifestyle are important for overall health it is important to not become so restrictive with the thoughts that my cancer can be defeated or kept at bay by what foods I ingest or a specific supplement I am taking.  Easier said than done I can tell you but with my specialists encouraging me to relax a bit and enjoy life's indulgences it has helped me to stop and focus on achieving overall balance and nutrition and not obsess.

I continue to take the supplements I have written about previously as part of a daily regimen...ritual if you will.  My daily ritual includes lemon water with Vitamin D, a probiotic, Vitamin C powder, Greens and Reds powder, with Curcumin (1000mg X 4 times a day).  I consume a tablespoon of Coconut oil twice daily.

But I have added daily aspirin therapy (2 X 325mg) along with a proton-pump inhibitor (PPI) to minimize the gastric injury from the use of the aspirin.  Aspirin you may be asking?  You may have heard about its use for heart benefits particularly for those at increased risk to cardiac events but for cancer prevention / recurrence mitigation?  Really?




Actually there is some building evidence that suggests that daily aspirin may reduce the risk of recurrence of colon cancer for those at medium to high risk of recurrence - and that's me.  The evidence isn't entirely convincing and no conclusive (Phase III) trial, (randomized, double-blind, placebo controlled and all that jargon) has concluded that there is statistically significant evidence that daily aspirin reduces risk of recurrence.  And if so at what dose?  And for all tumour types or only those with specific tumour/gene types?  Daily or every other day?  And how would we determine that indeed it was the aspirin therapy that was to "blame" for the reduction in recurrence of colorectal?

Just a simple Google search for aspirin and colon cancer recurrence returns a plethora of results that suggest that there may be something beneficial here...

http://www.cancer.gov/clinicaltrials/results/summary/2002/aspirin0402
http://www.sciencedaily.com/releases/2012/04/120409164525.htm
http://www.rxpgnews.com/coloncancer/Aspirin_May_Reduce_Risk_of_Colon_Cancer_Recurrence_1480_1480.shtml
http://www.docguide.com/aspirin-may-prevent-colon-cancer-recurrence-presented-asco
http://www.medpagetoday.com/Gastroenterology/ColonCancer/15480

Readers may recall that as recently as last year the media picked up on some promising research that suggested an aspirin a day could help prevent cancer making its way into the pages of the New York Times http://www.nytimes.com/2012/03/21/health/research/studies-link-aspirin-daily-use-to-reduced-cancer-risk.html?_r=0





I was in treatment when I heard of this "news" and immediately discussed with my Oncologist and medical team in the Clinic.  At that time we decided to defer until  some time after chemotherapy, to allow my body to recover from the drug therapy, to return to somewhat "normal", to have my GI system heal.  But with the passing of these months since the end of chemo and the distressing news of fellow colon cancer battlers who have not had the same positive news after surveillance tests as I had received, I returned to my mantra - that I would do whatever it takes to improve my prognosis, to increase my odds of survival...even if by just a few %.  During my meeting with my Oncologist I pushed for initiating the aspirin therapy.  And f$%^ the risk of gastric injury!!! - I will mitigate it as much as I can with the PPI and the healthy diet and probiotics...When faced with a decision between possible lower risk of cancer recurrence vs. increased risk of gastric bleeding / injury - it's not much  of a decision actually.  To steal the battle cry from a good friend and fellow battler Barb - Bring it on!!!

Quite frankly...although there is no convincing evidence...no one Trial or Study that we can point to that proves that aspirin is proven to significantly reduce the risk for recurrence of colon cancer, if it possibly could offer benefit, if it could reduce the risk of recurrence, if it does reduce the risk of metastases, if it could possibly help me KICK the CRAP out of COLON CANCER then I gladly add it to my regimen.

So the daily ritual now includes two aspirin.  And heck...I am reducing my risk of heart attack at the same time.

 

Sunday, April 21, 2013

Victoria

One year ago today Victoria did me the absolutely amazingly wonderful honour of being my wife.



What a year it has been so full of dizzying highs, terrible lows, butterflies in the stomach from the excitement of love, and distress in the stomach from treatment, tears of sorrow, and tears of joy.  Through all the ups and downs, the hills and valleys of this past year there has been one thing that has been unwavering and consistent on this continuum of life...and that is that regardless of how unstable I have been...whenever I found myself beginning to wallow in the despair of it all...when my faith was shaken....



Victoria propped me up, brought me balance, sanity, peace, laughter and always love....always with a smile...




Words on a blog cannot express how lucky I feel to have met this wonderful amazing woman...I continue to be a little in awe of her...



Thank you, Victoria for being you.
Thank you for loving me.  
Thank you for marrying me.






Happy 1st Anniversary Victoria.


And hey....even the Kinks think Victoria is pretty darn special...
Lyrics | Kinks lyrics - Victoria lyrics